What happens after my child gets an autism diagnosis?

If your child has got an autism diagnosis, it may feel a little daunting. Remember that your child has not changed because they’ve got a diagnosis.

Having a diagnosis means that you now have the information you need. This can help you to understand your child and their needs better.

Support for you and your child

  • Find out about what may be available to support you as a family. You could consider accessing a support group. The National Autistic Society run local groups for families.
  • You could also try the National Autistic Society’s Early Bird Course. This can help you to understand autism better. It can give you confidence in communicating with your child.
  • Your child might want to meet other autistic children. You can find what’s available in your area on the Autism Services Directory.

Support for siblings

  • It’s important to make sure that any other children in the home also feel supported.
  • Spend time helping any other children in the house to understand what is happening. Spend one-on-one time with them to talk about it. Listen to them and ask them if they have any particular worries.
  • You could also involve older children in conversations supporting your autistic child.
  • Look at what support is offered by Sibs. This is a charity helping to support the siblings of disabled people.

School support

Social care

  • If your child is considered to be “in need, they should be eligible for local authority support.
  • This can be with or without a diagnosis.
  • Usually, you can get this by requesting a needs assessment. You may also be able to be assessed as a carer, which will give you access to support.

Financial help

  • Depending on the needs of your child, you may be eligible for certain benefits.
  • This includes Carer’s Allowance and Disability Living Allowance.
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This advice was written by our experienced Parent Talk coaches. Parent Talk is a free online service for parents and carers, provided by the charity Action for Children. For more advice, message our parenting coaches with our online chat.

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